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What to say (and not say) to someone who just got diagnosed

Member · · 402 views
My best friend's wife was just diagnosed with mesothelioma. I want to support them but I have no idea what to say. Everything I think of sounds either too optimistic or too dark.

For those of you who were diagnosed or cared for someone, what did people say that actually helped? And what did people say that, even with good intentions, made things worse?

8 Replies

Family
hey this is such a good question. when joe got his diagnosis i remember people trying SO hard to be positive and honestly it kinda felt like they were dismissing what we were actually going through, you know? like i didn't need someone telling me about their cousin who beat cancer or whatever.

what really helped was when people just... acknowledged it sucked. said "this is hard and im sorry" and then asked what we actually needed instead of assuming. carl's right about the showing up thing too, one of my former colleagues just started dropping off meals without asking. no big production about it, just "i made extra lasagna."

also people asking about joe specifically instead of just talking to me about "my husband's illness" made a difference. he's still himself, still the same person, and i think he appreciated when friends treated it that way.

i'd say tell your friends you're there and mean it, not in a "stay strong" way but in a "what can i actually do" way. and yeah don't pretend to know what they're going through because honestly nobody does until they're living it.

how are you feeling about supporting them? that's kind of you to be thinking this through first.
2 found this helpful
Patient
Heres what meant alot to me when I got the news last December. My buddies just showed up. didnt try to be all cheerful about it or act like they knew what I was going through. They just... were there. One guy brought beer and we sat in the garage like normal, didnt even talk about the cancer stuff much at first.

What kinda sucked was when people would say stuff like "oh you'll beat this" or "I know someone who had cancer and theyre fine now." Like yeah I get it your trying to help but it made me feel like they werent really hearing what I was dealing with. Also dont ask them a million questions about treatments and prognosis right away, thats between them and their docs.

Best thing you can do is just be normal with them. Call and ask if they wanna grab lunch or watch the game. Help with the stuff that gets harder, yard work, grocery runs, that kinda thing. When I had my surgery back in Feb my buddies actually came by and did alot of the stuff around the house I couldnt do. That meant way more than any sympathy card.

And honestly just keep checking in even after the first week. People tend to forget about you after the shock wears off but thats when you really need your people around. Your friend is lucky to have someone who cares enough to figure out how to help right.
2 found this helpful
Family
Yeah, Carl and Angela are right about that. What actually helped me when my dad was diagnosed. And I'm a nurse practitioner so I was coming at this from both sides, you know, the medical side and the daughter side, was when people asked specific questions instead of just saying "let me know if you need anything." Because honestly nobody knows what they need in those first weeks.

Like, my friend brought groceries and asked what my dad could actually tolerate eating. Another person offered to sit with him on a specific Tuesday so I could handle some of his medical stuff without worrying. That mattered way more than the "everything happens for a reason" type comments, which... yeah, those land really badly.

I'd tell your friend's wife's husband (or whoever you're closest to) that you know mesothelioma is serious and you're not gonna pretend it isn't. Then ask what their actual days look like. Do they need meals? Help with appointments? Someone to just sit around? The early diagnosis phase is a lot of scans and doctors visits and trying to figure out treatment options, and it's exhausting in ways that aren't always obvious from the outside.

And don't worry about saying the perfect thing. Honestly what helped most was just... people treating my dad like he was still himself, not like he was already dying. He's on palliative care now and that matters even more.
Family
I think what's hardest is that people mean so well but they jump straight to either "everything will be fine" or they get really quiet and awkward, like mesothelioma is something you can't even say out loud. Your friend's wife needs people who can sit with the reality of what's happening without trying to fix it or make it better with false hope.

What actually helped my dad. And honestly what helps me now that we're managing his palliative care, is when people asked specific questions instead of vague stuff. Not "how are you?" but like "did you eat today?" or "can I bring dinner Tuesday?" or even just "what's one thing that's been hard this week?" Those concrete questions let you actually talk about what's going on instead of giving the automatic "I'm fine" response.

And honestly? Sometimes people just need to hear "this sucks and I'm sorry." You don't need to be a doctor or have all the answers. Your friend probably already knows more about mesothelioma than they ever wanted to know. What they need is someone who gets that this diagnosis is serious and scary and doesn't pretend otherwise, but also shows up anyway. That's the real support.

The worst thing people said to my dad were those "everything happens for a reason" type comments. Just... don't do that. There's no silver lining to a stage IV diagnosis and acting like there is feels dismissive of what he's actually facing.
Family
You know what really got me was when people asked "what do you need?" and then actually listened to the answer instead of just saying it to be nice. Like, I didn't need cheerleading and I didn't need pity either. I needed someone to help me figure out logistics, or just sit with us while we processed things. Your friend's wife is probably gonna have a million doctor appointments and insurance headaches and all that stuff nobody wants to think about but still has to happen.

Also honestly? Just say the word. Don't dance around it. When people got all quiet and weird about saying "mesothelioma" it made it feel like some shameful secret instead of what it actually is, a medical diagnosis that your friend's family is dealing with. Treating it matter-of-fact actually helped us feel less alone in it.

And maybe don't lead with survival stats or miracle stories right now. That comes later when people are ready to research and fight. In those first weeks after Joe's diagnosis we just needed people to acknowledge that yeah, this is serious and scary, and we're gonna figure it out together. That's what actually meant something.
Family
oh man, this is such a good question and i'm glad you're thinking about it. when joe got diagnosed last september i was honestly shocked at how many people just... didn't know what to do with us. some folks went way too cheerleader on it like "oh you'll beat this" and others got so uncomfortable they just disappeared, you know?

what actually helped was when people just showed up and didn't make it about them. one of my neighbors just started leaving meals on the porch, no big speech, no "let me know if you need anything" (because honestly who has energy to ask). our daughter's friends would text joe directly with jokes or memories instead of trying to be all serious and heavy about it. that felt normal.

the stuff that stung was when people implied he did something to deserve it or got real quiet like he was already gone. and the toxic positivity thing... i taught for 35 years and i learned pretty quick that sometimes people need permission to just feel scared and angry instead of being told to stay strong and fight. he's doing immunotherapy now and some days are rough and that's just real.

i'd say maybe ask your friend what would actually help instead of guessing. like "can i bring dinner wednesday" instead of "let me know if you need anything." show up. be normal with them when you can. and don't disappear once the initial shock wears off, that's when it gets lonely.

you sound like a really good friend for even thinking this through.
Medical Expert Response
What Angela and Carl and Sarah are all touching on is something I see a lot in my work with families going through this... there's this gap between wanting to help and knowing how to help, and it can make people freeze up completely.

One thing I'd add, sometimes the most powerful thing you can say is something like "I don't know what to say, but I'm not going anywhere." It names the awkwardness honestly instead of papering over it. Giving yourself permission to not have the right words is actually a gift to them too.

And please, avoid the stories. "My uncle's neighbor beat cancer with..." just puts pressure on people when they're already overwhelmed. Your friend and his wife don't need hope-by-comparison right now. They need presence.
3 found this helpful
Medical Expert Response
What Angela said about people actually listening to the answer... that piece is so real, and it connects to something I see a lot in my work with newly diagnosed patients and their families.

One thing I'd add, sometimes the most helpful thing is just naming what you're willing to do specifically. Not "let me know if you need anything" but "I'm going to drop food off Tuesday, what do they like to eat." It takes the decision-making off people who are already completely overwhelmed.

And honestly, just saying "I don't know what to say but I love you both and I'm not going anywhere" is enough. You don't have to fix it. Most people just need to know they won't be abandoned.
3 found this helpful

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