So Joe's oncologist mentioned something about trust funds when we were sitting in that awful waiting room at Moffitt back in November, and honestly I didn't absorb much because I was too busy trying not to cry in front of the receptionist. But now that we're a few months into his immunotherapy I'm trying to get my head around the financial side of things and I keep seeing different numbers online. Like some sites say there's dozens, other places say over a hundred?
I taught high school for thirty-one years and I'm used to research but this stuff is genuinely confusing because the websites don't always explain how they're counting them or if they're all still active or what. And every time I find a list it seems different from the last one I looked at.
Does anyone here actually know roughly how many of these trust funds are out there and working? Like are we talking 50, 100, 200? And is there a resource that actually lists them in one place or do you have to hunt through each one? Our lawyer mentioned it but we haven't had a real deep dive yet and I don't want to show up to that meeting looking completely lost.
How did you guys navigate this part when you were figuring out what Joe might be eligible for?