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how much asbestos actually gives you meso - is there a safe amount

Veteran · · 418 views
So I keep asking my VA rep and my oncologist this same question and neither one wants to give me a straight answer. They just say "there is no safe level" which I get but that's not what I'm asking.

I'm trying to figure out if the couple years I spent in the barracks at Camp Lejeune from 1978 to 1982 is what got me, or if it was something else during my time on the Iwo Jima. Or both. Because if I can pin it down maybe I can help other guys figure out their own exposure.

The thing is nobody talks about dose. They talk about "occupational exposure" or "significant exposure" but what does that actually mean. I was around asbestos insulation in the barracks sure, but I wasn't installing it or removing it. I was sleeping under it. Is that the same thing as working in an asbestos plant for thirty years.

I know some guys who worked construction their whole lives and never got meso. And some guys who had one job site for a year and got diagnosed at 50. So there's gotta be something else going on besides just the amount. Genetics maybe, or how you were exposed, or just bad luck.

Anybody else trying to figure this out for their VA claim. Because my lawyer says the more specific I can be about the exposure the better it looks to the VA.

12 Replies

Veteran
Spent 20 years on the Oriskany so I get the question, L. The straight answer they won't give you is probably because there legitimately isn't one. Some guys got it from months of exposure, some from decades. Some never got it at all.

Here's what I know from my own situation. Got diagnosed June of this year after a routine VA screening caught something on my chest X-ray. I was a hull tech so I worked with asbestos insulation regularly, not just sleeping under it. But the thing that got me thinking was talking to another Chief who had the exact same job on a different ship and he's fine at 72. So yeah, genetics or luck or something we don't understand yet.

On your VA claim though, your lawyer's right about specifics. I documented every ship I served on, every compartment I worked in, every asbestos product I can remember handling. Dates matter. The VA wanted to know was it friable or non-friable, how often, protective equipment or none. That stuff helped even though I can't prove it caused mine versus something else.

The dose question though...I quit asking it after my pleurectomy in August. The docs just kept saying cumulative exposure over time and individual susceptibility. Doesn't help you figure out which posting got you. But for your buddies trying to sort their own stuff, tell them to write it all down anyway. The VA doesn't need to know why you got it to approve your claim, just that you were exposed where asbestos was present. That's the play.
Veteran
Yeah hull tech is a different beast than what I was doing. You were actually working with the stuff, cutting it, handling it. I was just in the barracks breathing it in every night for four years. My lawyer keeps saying that "cumulative exposure" matters more than intensity, but I don't know if I believe that yet. You had maybe higher concentration but shorter duration if that makes sense. I'm still trying to figure out if the ship exposure stacked on top of the barracks or if one of them was the real culprit. Did your VA claim go smoother since you had more direct occupational exposure documented, or did they still give you the runaround.
Medical Expert Response
The genetics piece you mentioned is real and it's something that doesn't come up enough in these conversations. There's actually research showing that mutations in the BAP1 gene show up in a meaningful percentage of mesothelioma cases, which suggests some people are genuinely more susceptible to the same exposures that other guys walk away from fine. So when your construction buddy had thirty years of it and never got sick... that might not be luck exactly.

On the dose question, what I've seen in my work with veterans is that the VA responds well to specificity about the type of exposure, not just the duration. Sleeping near deteriorating insulation in a barracks for four years is actually documented exposure. Friable asbestos releasing fibers into the air you breathed every night. That's different from a one-time visual contact with intact material, and the VA rating system does recognize that distinction even if nobody's saying it clearly to you.

Journaling your specific memories of conditions in those barracks, smells, visible dust, any maintenance work happening nearby, that kind of detail has genuinely helped veterans I've worked with build their claims. Talk to your own doctor and your VSO about how to frame it formally though.
3 found this helpful
Veteran
Yeah the genetics angle is what I've been trying to get someone to actually explain to me. The BAP1 thing, is that something they can test for now or is it just something they know about after the fact? Because if it's testable that could actually help me make sense of why I got this and some of the other guys from my unit didn't. And it might even matter for my VA claim if I can show I had some predisposition. My lawyer hasn't mentioned any of that stuff so I'm wondering if it's worth bringing up to him.
Veteran
You're asking the right question but I think you're chasing the wrong answer, M. Here's what I know: I was a hull tech on the Oriskany from 71 to 91, literally cutting and removing asbestos insulation from pipes in compartments that were maybe 6x8 feet with no real ventilation. Wore a cloth mask most of the time, that's it. Got diagnosed in June at 76. But my buddy J was an engineman on the same ship same years, more exposure than me probably, and he's fine at 79. My doc at the VA said the dose question doesn't matter as much as the fiber type and whether you got unlucky with how your lungs processed it. I stopped trying to pin down which deployment got me. Instead I focused on getting my claim documented with every ship I served on and every space I worked in. That's what the VA actually cares about. The genetics piece Rodriguez mentioned, that's real too but you can't change it so don't waste time there. Your lawyer's right about specificity but they mean which spaces, which years, which type of work. Not the exact tonnage or whatever.
Medical Expert Response
The dose question is one I get a lot and you're right that "no safe level" is technically accurate but doesn't really answer what you're asking.

Here's what the research actually shows. The IARC (International Agency for Research on Cancer) has looked at this extensively and the relationship between dose and mesothelioma is genuinely different from most other cancers. With lung cancer from asbestos you see a pretty clear dose-response curve, more exposure equals more risk. With mesothelioma the curve is much flatter at the low end, meaning even relatively low cumulative exposures can trigger it in susceptible individuals. The Hodgson and Darnton study from 2000 tried to quantify this and found that amphibole fibers (the type common in naval applications and older building insulation) were dramatically more potent than chrysotile, sometimes by a factor of 100 or more.

So the distinction between sleeping near deteriorating insulation versus actively disturbing it matters, but maybe less than you'd hope. Friable (crumbling) insulation releases fibers passively. And ship environments are particularly bad because of the confined spaces and poor ventilation.

On the genetics piece, you're onto something real. There's a germline BAP1 mutation that significantly increases susceptibility, and researchers at NYU Langone published work in 2022 showing that about 10% of mesothelioma patients carry it. That could explain some of the "one job site" cases you're describing.

For the VA claim specifically, your instinct to document both exposures is sound. Talk to your oncologist about whether BAP1 testing might be relevant to your case.
2 found this helpful
Veteran
Yeah that dose-response curve thing is exactly what I needed to hear. So you're saying mesothelioma doesn't work like a math problem where X amount of exposure equals Y percent risk. That actually makes sense because like I said, I know guys who got hammered with asbestos and never got sick, and other guys who caught it from way less. My oncologist kept dodging this so thanks for actually breaking it down. Does that mean my lawyer's idea about pinpointing the exact exposure location matters less than we thought, or is that still important for the VA claim side of things.
Family
Joe actually asked his oncologist the same thing and got the same non-answer... I think they genuinely don't know enough to say "X fibers = meso" because it's so individual. Your lawyer's right though that specifics help with the VA even if it won't change your diagnosis.
Patient
I've been trying to piece together the same thing with my Johns-Manville exposure from the late 70s, and honestly the research shows dose and duration matter but individual susceptibility is all over the place. Your lawyer's right that specificity helps with the VA, but I'd focus more on documented asbestos products in those specific locations rather than trying to quantify exactly how much you breathed in, since that's basically impossible to calculate retroactively anyway.
Veteran
Yeah that makes sense, the documented products angle is smarter than trying to guess at exposure levels. I've actually started pulling maintenance records from Camp Lejeune for the barracks I was in, seeing what asbestos containing materials were listed. The VA seems to care more about "was asbestos present in your work environment" than "did you breathe in X fibers per cubic centimeter" which I guess is more realistic.

Johns-Manville though, that's rough. At least you've got a clear source. I'm still not sure if it was Lejeune or the ship or both, which apparently matters for the claim even if it doesn't really matter for the diagnosis.
Attorney Expert Response
Your lawyer is right that specificity matters, and the dose question you're asking is actually one of the more sophisticated questions I hear, so let me try to be more useful than "no safe level."

The science does distinguish between types of exposure. There's a concept called cumulative fiber burden, and researchers have found that even relatively low-level ambient exposure like sleeping in a space with deteriorating friable insulation over four years can be meaningful, especially if the fibers were amphibole type, which was common in Navy construction materials from that era. The Iwo Jima and ships like her were heavily insulated with amosite and chrysotile in the engine spaces and berthing areas. The barracks at Lejeune had their own contamination issues that are pretty well documented now.

The genetics angle you mentioned is real. There's research around BAP1 gene mutations that may explain why two people with similar exposure histories have very different outcomes. So yeah, it's not purely dose.

For your VA claim, what actually moved the needle in cases I've seen is an industrial hygienist's expert opinion connecting your specific duty assignments to documented asbestos-containing materials in those locations during those years. The Camp Lejeune years from 1978 to 1982 fall right in the window where exposure records exist through ATSDR documentation.

Both exposures could be contributing factors legally, and they don't have to be mutually exclusive. VA claims can recognize multiple service-connected sources.

Please do consult an attorney about your specific situation, because the evidentiary strategy for a VA claim versus potential litigation can differ in ways that matter.
2 found this helpful
Attorney Expert Response
Your lawyer is right that specificity matters, and honestly the dose question is one that comes up in almost every asbestos case I've worked on over the past two decades.

Here's what the science actually says, and it's complicated. There genuinely is no established "safe" threshold for mesothelioma specifically, which is different from asbestosis or lung cancer where there's more of a dose-response relationship. Meso can show up after relatively brief exposures, and we've seen that in litigation going back to the early RAND studies from the 1980s. So your doctors aren't dodging you, that's actually the honest answer.

But your instinct about dose mattering for your VA claim is correct in a different way. The VA and courts don't need you to prove a threshold was crossed. They need you to show the exposure was real, identifiable, and connected to your service. The Iwo Jima and Camp Lejeune between 78 and 82 are both well-documented asbestos environments. We're talking about ships that were built with Unibestos pipe covering and barracks with friable insulation overhead.

The genetics angle you mentioned... that's real too. BRCA2 mutations show up in a small percentage of meso patients, maybe 5 to 8 percent in some studies, and BAP1 gene mutations are increasingly being looked at. Could affect susceptibility. But for VA purposes that doesn't diminish your claim, it just adds context.

You'd want to get an industrial hygienist on record if this goes to a formal claim or litigation. They can reconstruct exposure levels from historical records and your work history. That specificity you're looking for, that's actually their job.

Please do consult an attorney for your specific situation, but you're asking exactly the right questions.
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