so we're trying to figure out where to take joe for his immunotherapy and honestly theres so much information out there its making my head spin. we live in tampa but were open to going wherever makes the most sense.
right now im looking at things like how many mesothelioma cases they actually see - like a lot or just a few? and whether the doctors there specialize in this specifically or if its just one of many things they do. i taught for 35 years and learned real quick that specialists who do the same thing over and over are usually better at it than generalists. same logic applies here i think.
were also checking out survival rates and how long patients have been doing well after treatment there. the hospital website stuff is nice but i want to know what real people experienced. weve been asking if they have support programs too because honestly the emotional side of this is huge and we need more than just good doctors.
one thing thats been helpful is calling and asking to talk to someone who actually works there - not the marketing person but like a nurse coordinator or someone in the office. they give you the real story about wait times and what the experience is actually like.
has anyone else gone through this process? what mattered most to you when you were choosing?