Skip to main content

what symptoms made you realize something was actually wrong

Family · · 7 views
So my dad didn't think anything of it at first. He was just short of breath doing yard work in April, figured it was age and being out of shape. Then the cough started, this persistent dry thing that wouldn't go away even with OTC stuff. By summer he was getting chest pain on one side and his primary care doc kept saying it was bronchitis or allergies because he had no fever.

I'm a nurse practitioner so I was pushing harder on it. The shortness of breath kept getting worse and he started noticing he couldn't do his usual stuff without getting exhausted. That's when I made him get imaging done and that's when they found the fluid in his pleural space.

I think what gets people is that a lot of these symptoms look like nothing. Cough, fatigue, mild chest discomfort. My dad would have waited months longer if I hadn't been checking in on him. The pleural effusion is what finally showed up on the CT and that led to the biopsy.

If anyone here has a persistent cough that's not responding to usual stuff, or you're getting winded doing things you used to do easily, don't let it slide. Especially if there's any history of exposure. I know everyone says that but I'm saying it as someone who sees patients and also as someone whose dad got diagnosed at stage IV in March.

What made you all go get checked out?

2 Replies

Patient
I'm dealing with almost the exact same progression right now, actually. Persistent cough starting last spring, then the shortness of breath crept in, and my doctor kept dismissing it until I pushed for imaging myself. Got my peritoneal diagnosis in November after they found fluid, so catching it earlier than your dad is something I'm grateful for even if stage II still feels surreal.
Family
Joe's was almost like a slow fade, you know? He'd come home from work tired but that's normal, then one day in like July he mentioned his back was sore on the left side. We thought maybe he slept wrong or something. But then the shortness of breath showed up doing things he'd done a thousand times, like taking the trash cans to the curb, and that's when I got worried. The cough came later, maybe August, and that's what finally made him call the doctor. I think because I spent 35 years in classrooms noticing when kids were actually sick versus just complaining, I know the difference between "eh I'm getting older" and "something is actually wrong here." His primary care doc didn't push hard enough at first either, kept saying it was stress related, so we went to pulmonology ourselves without waiting for a referral. Got the CT in October and there it was. Started immunotherapy in November at Moffitt Cancer Center here in Tampa.

What's wild is how much I replay those months wishing we'd pushed sooner, but honestly? Some doctors just don't think mesothelioma because it's rare. How's your dad doing now with treatment?

Share Your Experience

Sign in or create a free account to share your experience.

Discussions in this community are for informational and emotional support purposes only. They do not constitute legal advice, medical advice, or an attorney-client relationship. Always consult a qualified professional for advice specific to your situation. Community Guidelines

Call Now: (800) 400-1805 Free Case Review • Available 24/7