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picking a treatment center when youre stage II - what actually mattered for me

Veteran · · 3,604 views
So I had my pleurectomy at Eastern Virginia Medical Center back in August after getting diagnosed in June. Before I picked them I talked to maybe four or five places and honestly the difference between a good center and a mediocre one is huge when you're already sick.

First thing I did was ask each place how many pleural meso cases they actually do per year. Not total cancer cases. Pleural meso specifically. One place told me they do about 8 to 12 a year and that felt right. Another one said they do a bunch but couldn't give me a number which was a red flag, so I crossed them off.

Second, I wanted to know if they had a dedicated thoracic surgeon who does this stuff regularly versus somebody who does it once in a while. Big difference. My surgeon at EVMC, Dr. Kellerman, he's done this procedure probably fifty plus times. You can tell when somebody knows what they're doing versus when they're learning on the job.

Third thing was asking about their multimodal approach. Stage II usually means chemo before surgery, surgery, maybe radiation after. I wanted one place that had all three specialists in house or at least working together tight, not me shuttling around to different hospitals. EVMC had that figured out and it made recovery a lot smoother.

Also asked about their follow-up imaging schedule and what they do if something shows up between appointments. That matters more than people think because you need to know somebody's got your back if something goes sideways.

Don't just go to the biggest name hospital either. Sometimes a smaller center that specializes in this stuff is better than a giant place where meso is just another case to them. I'm retired Navy so I'm used to doing the legwork myself. Make some calls. Ask the hard questions. You're trusting these people with your life.

8 Replies

Veteran
Good post C. You nailed it on the specifics. I did almost exactly the same thing back in June when I got the diagnosis. Called around, asked the numbers, and yeah that one place that couldn't tell me how many cases they see annually went straight in the trash. How do you not know that.

Dr. Kellerman's the same guy who did mine in August. Small world. He walked me through the whole thing before surgery, showed me scans, explained what he was gonna do step by step. That kind of prep matters when you're going under the knife. I've been through a lot in the Navy but having somebody explain what's happening to your body beats guessing every time.

The multimodal thing is huge. I did neoadjuvant chemo from June through July, then the pleurectomy in August. All at EVMC so no running around between hospitals trying to coordinate my own care while I'm already beat down. That alone probably helped with recovery. Some guys I've talked to on here had to bounce between three different places and it sounds like a nightmare.

One thing I'd add that you didn't mention is asking about their complication rates and what happens if something goes wrong post-op. Not trying to scare anybody but you need to know if this place can handle problems on their own or if they're gonna be calling another hospital at 0200 hours when you need help. Ask it straight. Most places will give you honest answers if you ask the right way.

You're right about not chasing the biggest name. Do your homework.
Medical Expert Response
This is really well thought out and honestly matches what the research shows. The MARS 2 trial published in The Lancet in 2021 found that surgical outcomes for pleural mesothelioma correlate strongly with institutional volume, meaning centers doing more procedures had meaningfully better results. Your instinct to ask for a specific number was exactly right.

The multimodal coordination piece you mentioned is the one that gets underappreciated. I've seen patients at institutions where the thoracic surgeon and the medical oncologist had genuinely never sat in the same room together to discuss a case, and you can feel that in the care. When those conversations happen in a tumor board setting before anyone touches a patient, the whole plan just fits together better.

The follow-up imaging question is smart too. For stage II after pleurectomy, most guidelines support CT imaging every three months for the first two years, but what matters more than the schedule is whether someone is actually looking at the scans with urgency when something ambiguous shows up. That's a culture thing, not a policy thing, and you can only really assess it by asking pointed questions like you did.

One thing I'd add for anyone reading this who is still in the decision phase. Asking to speak with a patient who went through the program before you commit is completely reasonable, and a good center will facilitate that without hesitation.

Talk to your own oncologist about what volume thresholds make sense for your specific staging and histology. But everything you described is the right framework.
4 found this helpful
Patient
yeah that's solid advice, especially the part about asking how many cases they actually do. i'm still shopping around for mine and that number question is gonna be first on my list now.
Veteran
Good call, C.W. Don't let them dodge on that number either. If they hem and haw or give you a range that's too wide, that tells you something. The places that know their stuff will have that stat ready to go because they track it.
Veteran
Good post, D. That's exactly how you approach it. I did the same legwork back in June when they told me what I had. Made four calls, asked the same questions you're asking.

The surgeon thing is real. My guy at EVMC, Dr. Kellerman same as yours, he walked me through the whole thing like he'd done it a thousand times. Confidence matters when you're on the operating table. You want somebody who knows where everything is supposed to go.

I'll add one thing though. Ask them point blank what their complication rate is and what they do if you end up in that percentage. Not trying to scare anybody but you need to know if they've got a plan for when things don't go textbook. My pre-op conversation included that and it settled my mind. Didn't need it thankfully but I knew they had protocols in place.

The multimodal stuff saved me from driving all over Hampton Roads every week. Had chemo at EVMC, surgery there, radiation planning at the same place. That continuity means your records are in one spot and the doctors actually talk to each other instead of you playing telephone with your own scans and bloodwork.

Recovery's been solid. Six weeks post-op now and getting back to normal routines. Takes time but you heal up. Navy taught me that too, just keep moving forward even when it hurts.
Family
oh wow thank you for posting this. my mom is stage III and we're literally in the middle of trying to figure out where to do her treatment and this is exactly what i needed to read right now.

we're here in phoenix and i've already called three places but honestly i didn't know to ask about the specific number of pleural meso cases per year. that's such a smart question and one of them gave me the same vague answer yours did so i'm definitely crossing them off the list. it's scary how much it matters because you're right, you're trusting them with everything.

my mom's oncologist mentioned a center about two hours north of here that apparently has a really strong thoracic surgery team and they do a lot of mesothelioma cases but i haven't made the calls yet. i keep putting it off because honestly the whole thing overwhelms me sometimes. like i'll be sitting at my desk grading papers and suddenly remember i need to be researching surgical centers and it just hits different when it's your mom you know.

the multimodal approach thing is huge because we definitely don't want to be driving all over the place for different appointments. i'm already juggling my teaching schedule and trying to help her with the stuff she can't do right now. adding more logistics would just break me i think.

did you have to do chemo before your surgery? my mom's oncologist mentioned that might be the route but i'm trying to understand what that recovery looks like so i can help her better...
Medical Expert Response
This is one of the best breakdowns I've seen on this forum and I want to add some data to back up what you figured out through experience.

The volume question you asked is exactly right. A 2019 analysis in the Annals of Thoracic Surgery looked at surgeon and hospital volume for pleural mesothelioma resections and found that outcomes improved significantly at centers doing more than 10 cases annually. Your instinct to push for a specific number rather than accepting vague reassurance was the right call.

The multimodal team piece is where I've seen a lot of patients run into trouble. I had a patient last year who was coordinating between three separate facilities across two states, and the communication gaps between teams added real delays to her treatment timeline. Having a tumor board that actually reviews your case together, not just in theory, changes things.

One thing I'd add to your list: ask about their clinical trial access. Stage II patients sometimes have options for trials combining surgery with intraoperative chemotherapy (chemo delivered directly during the surgical procedure) that smaller or less specialized centers won't have on their radar at all. The SMART protocol trials out of Princess Margaret in Toronto have been particularly interesting to follow.

And your point about the follow-up imaging schedule is underrated. Recurrence patterns in pleural meso tend to be local, meaning near the original site, so the imaging cadence and who's reading those scans matters a lot.

As always, anyone reading this should bring these questions to their own oncologist since every case is different.
3 found this helpful
Veteran
Yeah, that data backs up what I was feeling during those calls. The ones who couldn't give me a straight answer about volume, that hesitation told me everything I needed to know. Appreciate you putting the research behind it because a lot of guys on here are gonna be making these calls scared and doubting themselves, and now they've got something solid to point to when a place dodges the question.

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