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looking for doc who does the combo treatment thing

Patient · · 81 views
so ive been reading that some doctors do surgery plus chemo plus radiation all together. my oncologist here in pittsburgh seems good but im wondering if i should go somewhere else that specializes in that multimodal stuff.

how do you guys know if a doctor actually has real experience with it? like what questions do you ask? ive got stage 3 pleural so im wondering if im a candidate for all three or just some of them.

also does it matter if you go to a big cancer center or is a regular oncologist fine as long as theyve done it before

8 Replies

Family
You're asking all the right questions, honestly. When Joe got diagnosed I kept thinking like I was back in the classroom, you don't just trust the textbook, you see how the teacher actually handles the material, you know? So I started asking his oncologist things like "how many mesothelioma patients have you treated with this combination" and "what's your success rate been" and honestly... just listening to how they answered told me a lot.

The multimodal thing is huge for stage 3. Joe's doing immunotherapy right now after his surgery, and our doctor explained why he wasn't a candidate for the full three-part combo, had to do with his lung function and some other stuff. But a good oncologist will be straight with you about what your body can actually handle, not just what looks good on paper.

Big cancer centers have their perks, more resources, more experience. But I've met people who got amazing care from specialists in smaller cities too. What matters more is that your doctor actually focuses on mesothelioma specifically, not just general lung cancer. They're different beasts.

If your Pittsburgh guy seems good, I'd ask him point blank about his mesothelioma experience and whether he thinks you're a candidate for all three treatments or a modified approach. Sometimes the answer is "you need surgery first, then we reassess," not everything at once. How's your initial consultation gone so far?
Family
Yeah so this is exactly what we went through with Joe. My advice, and this comes from being a teacher for 30 years so I'm used to vetting people, is to ask your oncologist straight up: "How many stage 3 pleural patients have you treated with multimodal therapy in the last two years?" Get a specific number. A good doctor won't be shy about that.

We ended up at a bigger center for his treatment and honestly it made a difference just having the whole team right there. The surgeon, the chemo folks, the radiation people all talking to each other instead of your patient being the messenger. But Though if your Pittsburgh doc has solid experience and you trust them, that matters too.

One thing nobody really tells you, stage 3 pleural is tricky because sometimes you're a candidate for all three and sometimes the combo would actually hurt more than help. Your doc should be able to explain the "why" behind whatever they recommend, not just the "what." Does that make sense?

What's your gut telling you about your current oncologist?
Veteran
I did the combo route, surgery in December, started chemo after I healed up. My oncologist at UC San Diego brought in a thoracic surgeon and they basically coordinated the whole thing from the start. That mattered more than I expected.

Here's what I'd say: ask your doc straight up how many mesothelioma cases they've personally managed with multimodal treatment. Not just how many surgeries or how much chemo, but actual meso cases where they did all three. A good oncologist won't dodge that question. Mine told me her specific numbers without me even having to push hard.

Stage 3 is tougher than mine was but you could still be a candidate for all three depending on your overall health and how it's spread. That's really between you and your doctors though. But I'd definitely get a second opinion at a major cancer center if you're not sure. UCSD, Mayo, Memorial Sloan Kettering, places that see a lot of meso cases and have thoracic surgery teams right there.

One thing nobody told me upfront. The coordination between the surgeon and oncologist matters as much as their individual skills. Make sure they actually talk to each other and have a plan before you commit. I've heard stories of guys who went to good docs that didn't communicate well and it made the whole process messier.

Don't feel bad about shopping around. This is your life we're talking about. Your Pittsburgh doc should understand that.
Family
honestly my mom's oncologist in phoenix mentioned the combo thing too and i was so confused about all the options. i'd say just ask your doctor straight up how many mesothelioma patients they've treated with all three and what the outcomes looked like. My gut says if they've really done it a lot they won't hesitate to give you numbers. good luck with this, it's a lot to figure out.
Patient
yeah that makes sense. asking for actual numbers is smart. I didnt think of that. my guy said hes done "quite a few" but didnt really give me specifics when i pushed. might be time to get a second opinion somewhere bigger just to compare what they say.
Caregiver
My husband's oncologist at Barnes-Jewish has done the combo approach with him and honestly it made all the difference, so I'd say don't hesitate to get a second opinion if you're feeling uncertain. I'd just ask straight up how many mesothelioma patients they've treated with all three and what their outcomes looked like, most good docs won't mind that question at all.
Patient
Man, I'd ask your doc straight up how many mesothelioma cases they've treated with all three - surgery, chemo, the whole tune-up. Big cancer center probably helps but honestly a good local doc who knows their stuff beats a fancy name any day. Stage 3's tougher than what I had but worth asking if you're a candidate for the combo.
Patient
I'm stage 3 pleural too, diagnosed last month. My oncologist here brought up surgery plus chemo but said radiation was probably off the table for me because of where mine is sitting. Said the combo depends on what your scans actually show.

I asked him straight up how many pleural cases he's done with all three and he told me the number. Think he said 8 in the last two years. Then I asked if he'd ever consulted with someone else on a case like mine and he said yeah, they have a tumor board that meets every week. That felt like a real answer you know.

The big centers probably see more cases so maybe they've got it down to a science better. But honestly my guy said going to Pittsburgh for treatment when you live here matters too because you gotta do follow ups and you don't wanna be driving 4 hours every other week if something goes wrong. We talked about whether he'd refer me somewhere if he thought I needed it and he said he would.

You could ask your oncologist if they've discussed your case with other doctors yet.

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