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stage 3 pleural and trying to figure out which center is actually worth going to

Patient · · 1 views
So I'm sitting here looking at like three different places and I honestly have no idea what actually separates a good meso center from a mediocre one. My oncologist back here in Detroit is decent but she's basically saying I should go somewhere that does this stuff all the time and honestly that's not super helpful because I don't know what questions to even ask.

I had my EPP back in February at Michigan and it went smooth, real smooth actually, but now I'm looking at maybe needing more aggressive treatment because of some nodules they found on my follow-up scans last month and my gut is telling me I need someone who really knows what they're doing with stage 3 cases specifically.

Like what do you even look for. Number of surgeries they do per year? How long their patients actually live? Whether they do multimodal or just one thing? I've been reading about places like Mayo and MD Anderson and some specialized centers but I have no clue if those are actually better or if it's just marketing. My insurance is gonna be a nightmare either way so that's not really the limiting factor.

Did anyone else have to make this choice. What actually mattered when you were picking. Was it the surgeon's name or the team or the fact that they had all the equipment in house or what.

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